Sights and Sounds from the Adaptive Recreation Expo

Even though we had to dodge the rain drops, the Adaptive Recreation Expo provided great outdoor activities for the disability community at James Island County Park. Participants enjoyed many sports including kayaking, wall climbing, hand cycling and archery.

Several organizations were on hand to share information about their programs and services. Mobility Supercenter had a ramp van on display and also had an all-terrain wheelchair, called the Action Tracker, available for people to test drive. To see photos from the event, go to https://www.facebook.com/media/set/?set=a.10100945010638114.1073741845.21310342&type=1&l=621383503a.

As September comes to an end, we also close out Spinal Cord Injury Awareness Month. Over the past several weeks, I hope you’ve been able to see that the possibilities are endless for people with SCI when it comes living a fulfilled life. The longevity after an injury has increased thanks to the research and improved medical treatments. It’s also an added benefit to participate in recreational activities like the ones in the video below!

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New Mobility Options in Charleston

Gabe Klein, a nationally-recognized transportation expert, has been surveying the city to help improve mobility for everyone! Klein has worked in Washington, DC and Chicago. Yesterday, He presented some creative, yet practical, options to community members for pedestrians, bikers, public transit riders and automobile drivers.

He suggests having streetcar lines, bike-sharing programs and using transportation programs like Uber to decrease traffic congestion.

Although he briefly mentioned the Americans with Disabilities Act, the design options seem to foster accessibilility for people with disabilities. Crosswalks and curb cuts will be better; sidewalks will be wider. Overall, I think the ease of maneuverability will improve!

These plans will take several years to implement. However, in the meantime, we can all advocate for improving existing transportation.

I will share additional details from yesterday’s presentation in the next few weeks. To see pictures and videos of Klein’s work, visit http://www.gabeklein.com.

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Secondary Conditions of Spinal Cord Injury

When living with a spinal cord injury (SCI), there are more challenges than just not being able to walk. There are other healthcare issues that are very important.

Here are a few of the secondary conditions mentioned by the Christopher and Dana Reeve Foundation.

  • Autonomic Dysrefexia (AD) – AD can be a potentially life-threatening medical emergency if not treated quickly. AD occurs when the autonomic nervous system is overworked usually from pain, urinary tract infections, constipation and pressure sores. People with SCI, their family members and friends should recognize the symptoms like high blood pressure, headaches, increased spasms and sweating.
  • Bladder Management – If the bladder can’t be emptied normally, a catheter is used to empty the bladder. Some people leave a catheter in all day and urine drains into a bag. Others will do intermittent catheterizations every few hours. I do intermittent caths and empty my bladder through a stoma—a surgical opening through my abdomen.
  • Bowel Care – Similar to the bladder, it must be emptied regularly. Some people have a surgical procedure to reroute the bowels to empty in a colostomy bag. Other people use suppositories to help empty the bowels. I use the suppository method.
  • Deep Vein Thrombosis (DVT) – DVT is more common during acute hospitalizations, soon after acquiring a SCI. It is a blood clot that forms in the deep veins of the lower leg and thigh. It can be life threatening if the clot breaks away from the vein and travels to the lungs, causing a pulmonary embolism. Doctors can give blood thinners to prevent clotting.
  • Skin Care – People with paralysis are at risk for developing skin problems. Since people do not have sensation or feeling below their injury level, it’s difficult to tell if they have any cuts, abrasions or pressure sores. I’ve had a number of pressure sores—one on my ankle that led to my left foot amputation. Make sure to protect the skin by doing pressure reliefs in the wheelchair or rotating from side to side in bed.
  • Spasticity – Spasticity ranges from mild muscle stiffness to uncontrollable leg movements. Spasticity can be good and bad. Muscle stiffness can be good to help someone transfer from his or her wheelchair to the bed because it builds muscle tone. Spasms can be uncomfortable if they happen in the abdomen or back. Medicine is available to control the spasms.

With proper care and attention to these issues, people with SCI can still have an active and healthy lifestyle!

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Spinal Cord Injury Awareness Month

September is Spinal Cord Injury Awareness Month in the United States. According to the National Institutes of Health, here are some facts about spinal cord injuries:

*There are an estimated 12,000 spinal cord injuries every year in the United States alone.

*More than a quarter of a million Americans are currently living with spinal cord injuries.

*The cost of managing the care of spinal cord injury patients is $3 billion each year.

*The largest proportion of spinal cord injuries (36.5 percent) occurs during car accidents; more than a quarter are the result of falls; and the rest are due to acts of violence (primarily gunshot wounds), sporting accidents, and other less common causes.

*The average age at injury has risen and is now 42.6 years.
80 percent of spinal cord injury patients are men.

My Labor Day Weekend

The statistics may not mean a lot to you if you don’t know anyone living with an injury. But, here’s my take on things I notice when living with a disability. While spending a couple days in Myrtle Beach, South Carolina, I was able to evaluate the accessibility accommodations of the hotel where I stayed.

Although the room was deemed accessible, there are some features that are overlooked. The room was oddly shaped, making it difficult to get my wheelchair to the side of the bed where it’s easiest to transfer out of my chair.

The second challenge was maneuvering over the sliding door threshold to the balcony. A threshold ramp would solve the problem, but using some unused carpet squares work in a pinch too.

Throughout the month, I’ll share more information about spinal cord injury awareness.

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Student with Down Syndrome Begins College Career

Do you remember watching the YouTube video of Rion Holcombe that went viral when he received his acceptance letter to Clemson University? Holcombe is a South Carolina resident with Down Syndrome. That video has nearly two million views!

 It is now time for Holcombe’s dream to become a reality! He moved in to his dorm recently and CBS News was there to capture the excitement. Holcombe is enrolled in Clemson LIFE, a two-year program for students with intellectual disabilities. Programs like this one are becoming more popular on college campuses around the country.

 One of the greatest benefits is the opportunity for inclusion. Both students with and without disabilities can interact with each other, which promotes diversity. This model of education has become very successful and I hope it continues to improve the lives of people like it has for Holcombe.

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AccessAbility: A Bridge to Independence

The disAbility Resource Center is now doing business as AccessAbility. The new name, logo and website were created over several months and signifies the future for independent living.

By empowering people with disabilities, the organization will focus on four core services: advocacy, peer support, independent living skills training and information and referral. Each of these services promote inclusion and will create a better environment for everyone.

I’ve been on the Board of Directors for a number of years and I’m excited to see what AccessAbility will do for the disability community of the Lowcountry. Please watch my video below.

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Dare Devils on Wheels

I occasionally like the need for speed, but some guys take it to a whole new level. Can you imagine using your wheelchair as if it’s a skateboard and you’re doing tricks on half pipes? Or can you see yourself BASE jumping off bridges and building just for an adrenaline rush?

Aaron Fotheringham

Aaron Fotheringham

Aaron Fotheringham, also known as “Wheelz” does extreme stunts. Fotheringham, 22, has cerebral palsy and has been using a wheelchair since he was three years old. He has performed extreme stunts against some of the greatest BMX riders.

Watch him in action: http://www.youtube.com/watch?v=AUUVfPy0UgI

From one extreme sport to another, Lonnie Bissonnette is flying high. Bissonnette has a spinal cord injury and is a paraplegic BASE jumper. He acquired his injury from BASE jumping in 2004, but continued to have a passion for the dangerous sport.

Lonnie Bissonnette

Lonnie Bissonnette

ESPN’s Sports Center featured Bissonnette recently as he performed a jump off of the same bridge where he was injured.

Take a look at the video: http://espn.go.com/videohub/video/clip?id=11330555&categoryid=2378529

 

Both Fotheringham and Bissonnette have years of experience with their sports. I don’t recommend trying this at home.

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